All Baydon Brown wants to do is spend time with his family.
He may be only 27-years-old but he has almost died twice and isn’t meant to make it to his 30th birthday.
Baydon was born with cystic fibrosis which particularly affects the lungs and pancreas, clogging them with thick mucus. But then, in 2013, he also noticed something else was wrong.
“I had a really sore testicle, I’d done a lot of motorbike riding and thought it might have something to do with that, but I went to the doctor and he said it was all good.”
Not long after, Baydon made one of his many routine trips to Christchurch Hospital for his cystic fybrosis.
“They did ultrasound on it and it came back that I have testicular cancer and four days later I was having surgery.”
Baydon’s right testicle was removed and the Brown family was relieved to learn he was cancer-free. That was until last year. He was not feeling right so they got him in for a full body CT scan. The cancer was back. Baydon was told he had lymphoma.
“I sort of knew it was back, I was just feeling really sick.”
Baydon underwent four rounds of chemo in 2017.
“After that they said that it could be all clear, but then around New Year’s it came back.”
Combined with his cystic fibrosis the chemo can cause shortness of breath, a chronic cough and repeated chest infections. His pre-existing condition meant the treatment could kill him faster than the cancer.
“It was torture really,” he says. “I had fevers and couldn’t breathe properly, I only had one round and had to stop because I almost died twice.”
He says one round was enough to know he could not endure anymore. But without chemo, he has few options.
“They will just keep monitoring me, it’s just going to get worse and worse and then I’m not too sure, they don’t really know but said maybe two or three years.”
The Brown family have a trip to Australia planned for June where they will go to the theme parks on the Gold Coast.
“I’ve sold a couple of my cars, so I’ve got a bit of money to do a few things and the GiveaLittle money has been a huge help.”
While Baydon tries to keep positive towards his situation, he says he does have his dark days.
“I had a bit of a rough patch recently, I guess I just hadn’t taken it all in properly and it just hit me, but I’m alright now I’ve come out of it.”
Baydon is not currently taking any medication for his cancer. Other than the occasional pain killer, he is just trying to eat well and keep active.
Baydon says he has had amazing support from hospital staff in particular Robyn Beach who has been a huge source of strength for him.
Baydon says he doesn’t have anything he really wants to do on his bucket list but will continue to spend as much time as he can with friends and family.
Baydon’s friends have created a GiveaLittle campaign so Baydon can continue to visit friends and family. To contribute visit: https://givealittle.co.nz/cause/support-for-baydon-and-the-browns